Tuesday, April 30, 2013


I have tried many many supplements, too many to remember. But here are some of them... co-enzyme Q10, Acetyl L-Carnitine, vitamin B12, Alpha Lipoic Acid, Probiotics, D-Ribose, L-Glutamine, N-acetyl glucosamine, Vitamin C, Vitamin D, GABA, L-Tryptophan, Pantothenic acid, Melatonin, homeopathic remedies, VegEPA fish oil, SAM-e, DHEA, Evening Primrose oil, Vitamin B-Complex,  NADH, Taurine, Tyrosine, 5-HTP and Magnesium.

The only things that helped me at all have been Magnesium, the Pantothenic acid (vitamin B5), the B-Complex and the SAM-e, all of which I am still taking.

What about medications? I have taken anti-depressants on a number of occasions, mainly for sleep, at times for depression. I came off the last anti-depressant that I was taking six months ago. The SAM-e is an effective replacement.

Other drugs I have tried include Hydrocortisone, Midon, Provigil, Low dose naltrexone, thyroid hormones and fludrocortisone. The hydrocortisone helped a little, but did cause some anxiety and was awkward when I got a cold as I had to increase the dose. The LDN did seem to give me a little more stamina, but added to added sleepiness, so I stopped it. The fludrocortisone does help a little, with staying upright and with keeping going, but only about 5%. Nothing else has ever done anything else useful for me.

And that's it. Fifteen years worth of pill popping and a lot of half full supplement bottles in my cabinet.  My daily regimen of fludrocortisone, magnesium, B-vitamins, and SAM-e keeps me upright, just about.

I have also - though not for quite a while - tried those therapies and treatments farther out on the spectrum of available options. Reiki, reflexology, homeopathy, acupuncture, chiropractic, the usual gamut of 'alternative' approaches. For me they have been nothing more than placebo.

It is clear to me that if these therapies have any effect, it is simply because they are usually in a relaxing space, with a sympathetic person who will listen to you and take your complaints seriously.

In my experience, if there is to be any solution to this whole damn chronic situation, it has to come from the mainstream medical direction. And that involves research, and it also involves patients taking some responsibility for their own recovery. To do that you need information, and contact with other sufferers. Hence this blog I have started.


  1. I tried Floradix first and it made everything a lot better, and then I tried desiccated thyroid and it just fixed it immediately. All symptoms gone. And that fix has lasted four months now, although I keep having to raise the dose, and if I cut out the thyroid it seems to bring everything back. What was your experience?

    1. The thyroid hormone did nothing for me, though I have made progress recently in other ways. Glad to hear that it is helping you, I assume that you are taking it with the advice of a doctor, can they explain why you have to keep increasing the dose? That sounds a little worrying. Still, hope it goes well for you.