In recent
times I have found myself working as much as I can manage from September to
June, saving some money, and then trying out some therapy or other during the
summer.
Last summer
it was the Perrin technique. This was developed by Raymond Perrin, a doctor of
osteopathy in England .
It has a number of elements to it, but the main one is a kind of targeted
massage to clear the lymph ducts and so aid detoxification. Perrin's belief is
that CFS is caused by blockages in the lymph ducts, which are the body's way of
eliminating toxins, viruses and waste.
The liquid
that carries all of these toxins away is called lymph. In Perrin's view, in
ME/CFS, because of a trauma or stressor on the central nervous system the lymph
ducts get blocked and the lymph no longer carries toxins away from the body and
into the liver. Instead these toxins are pushed back up and towards the brain
where they cause many of the symptoms experienced by sufferers of CFS.
I found a
therapist that used the Perrin technique in Ireland and made an appointment to
see him last June. He explained that the treatment would involve weekly visits
for at least 12 weeks, and thereafter fortnightly and finally monthly. He also
suggested that I would be substantially recovered from my symptoms in twelve to
eighteen months, and was confident that he could help me.
There was
an initial appointment to assess my condition. One part was to answer a long
list of questions about my symptoms and their severity, trying to grade them
and to quantify my condition. This questionnaire I found mostly pointless, I
was asked about 40 different questions and told to answer without thinking,
rating each symptom on a scale of 1 to 5, depending on how it applied to me.
The
symptoms ranged from "dry mouth" to "frequent urination" to
"muscle pain." A lot didn't really apply to me, or else only vaguely,
and also there was no mention of certain problems that I do have, like food
intolerances. My answers were totalled and then used to offer me a grade as to
how severely I was effected. I was given a 6 out of 10 and told that the idea
was to get me up to 9 or 10 out of 10. Frankly I found the assessment procedure
to be a kind of weak attempt to give some kind of scientific credence to the
process, while not being at all scientific.
Anyhow, I
began my weekly appointments. This was tough as I had to do a two hundred mile
round trip in the car every week to see the Perrin therapist for half an hour.
This was a major investment of time and energy for me. The first appointment cost
€150, and thereafter it was €50 a time, plus the €40 or so it cost for petrol.
Each
session consisted of the specific lymphatic drainage massage, which was mainly
on the chest and back, massaging upwards towards the clavicle, where the lymph
is supposed to drain away. There was also some cranio-sacral massage, which
worked on specific points on the head, the idea being to aid drainage from the
brain.
I was also
given a set of daily exercises to do at home, basically reproducing what was
done in each treatment session, with a few extras. I did these religiously
every day, and didn't miss a week of the treatment, despite the distance I had
to travel.
My
therapist was friendly and helpful, though he did seem very anxious to make
sure I knew how effective the treatment had been shown to be. To be honest he
protested too much, it became a bit tiresome every time hearing about this
breakthrough with a certain patient (he never named his patients to me, I
stress), or hearing about whatever new research was being done which showed how
well the treatment worked. It smacked a little of desperation.
Still, I
kept it up. I was told that I may feel a lot worse at the beginning, as the
toxins left my system, but in truth I had no real reaction. I felt neither better
nor worse. This went on for seven or eight weeks. No reaction, no change, no
improvement.
Around week
eight or nine, I was told that the man himself, Raymond Perrin, the originator
of the technique, was coming to Ireland
to give a talk and would be seeing patients. I booked an appointment with him.
I was hoping he would have some ideas to get some change happening. At that
stage I still held out some hope for improvement, but it was fading fast
(For the continuation, check out the following blog post here. )
(For the continuation, check out the following blog post here. )
Just wish to state that I have been practicing Perrins technique for 2 years and whilst it hasn't yet cured me completely, I am benefitting enormously from and possibly could have been cured by now if I wasn't employed in a very physical job. The frequency of relapse are now rare and practicing the technique soon wards off the symptoms. I used to be ill to varying extents 60 - 70% of the time and now that is reduced to 10-20%. I am fitter and doing a job that would once have been beyond me. This technique requires huge commitment and may not work for everyone. It took 3 months for me to get past the side effects as well.
ReplyDelete